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Tips and Web Resources for Parents

Tips for Parents - How to be an effective advocate

BUILDING PARTNERSHIPS / COLLABORATIVE TEAMING
The intent of the Individuals with Disabilities Act (IDEA), the federal law guaranteeing a free appropriate public education to each child with a disability, is to enable parents to participate as equal partners in the development of their child's educational program. A collaborative team consisting of both parents and professionals is essential to better define the needs of the child. The guidelines below will help you build this foundation.

  • Recognize that parents and professionals have areas of knowledge and skills to contribute to the joint task of working together for the benefit of the child.
  • Encourage mutual respect.
  • Establish a working relationship with your child's educators.
  • Promote a sense of joint responsibility.
  • Develop honest, direct, and clear communication.
  • Maintain an open exchange of information.
  • Support shared planning and decision-making.

The Collaborative Team Process requires effective parent/professional communication, which has been shown to result in improved educational programming for students. Both parties bring important information to the relationship. Professionals bring specialized training, knowledge and experience; parents provide keen insight based on firsthand intimate knowledge of the child.

Benefits of Collaborative Teams include:

  • Increased ownership and commitment to goals
  • More successful implementation of planned interventions
  • Shared knowledge and expertise
  • Increased cohesiveness and willingness to work together on future projects
  • Increased evidence of "process gain"- generating new ideas through group interaction not generated through individual work

Advocacy
Being an advocate for your child requires assertiveness. Assertive behavior yields positive results. Sometimes people confuse being assertive and being aggressive. Following are definitions to describe these behaviors and their anticipated outcomes:

Assertive Behavior
Definition: Interpersonal behavior in which an individual actively communicates his/her personal rights without violating the rights of others. Assertive behavior is a direct, honest, and appropriate expression of one's feelings, opinions, and beliefs (Alberti and Emmons, 1979; Lazarus, 1971).
Results: Development of long term effective relationships; concerns and questions are discussed and handled in a positive manner.

Non-Assertive or Passive Behavior
Definition: Interpersonal behavior that enables an individual's rights to be violated in one of two ways: 1) an individual ignores his/her personal rights; 2) others are allowed to infringe upon an individual's personal rights. The individual is denying and inhibiting him/herself from expressing actual preferences.
Results: Person experiences behavior resulting in hurt and anxious feelings. By allowing others to violate one's rights, desired goals are seldom achieved.

Aggressive Behavior
Definition: Behavior in which an individual expresses his/her rights without consideration for the rights of others. Results: The violation of the rights of others results in domination and humiliation. Although goals may be perceived as accomplished, negative feelings and frustration are generated as end results. Also, results may be short lived since cooperation is needed by all to ensure success of a program.


Web resources for Parents

 

State Agencies and Bureaus

Connecticut State Department of Education – Bureau of Special Education:  http://www.sde.ct.gov/sde/cwp/view.asp?a=2678&Q=320730

Office of Special Education Programs (OSEP): http://www2.ed.gov/about/offices/list/osers/osep/index.html

Office of Civil Rights (OCR): http://www2.ed.gov/about/offices/list/ocr/index.html

U.S. Department of Education: http://www.ed.gov/

CT Parent Advocacy Center (CPAC): http://www.cpacinc.org/


CONNECTICUT COUNCIL ON DEVELOPMENTAL DISABILITIES

(DD Council) is a governor-appointed body of people with disabilities, family members, and professionals who work together to promote full inclusion of all people with disabilities in community life. The Council on Developmental Disabilities is located at:

460 Capitol Avenue, Hartford, Connecticut 06106.
Telephone: (860) 418-6160 (Voice)
(860) 418-6172 (TTY)
1 (800) 653-1134 (Toll-free in Connecticut/Voice).  
Website: www.ct.gov/ctcdd


DEPARTMENT OF CHILDREN AND FAMILIES

(DCF) focuses on working with families and communities to improve child safety, to ensure that more children have permanent families, and to advance the overall well-being of children. To report abuse or neglect call the DCF Hotline at 1 (800) 842-2288 (state-wide/Voice) 1 (800) 624-5518 (TTY).
Website: www.ct.gov/dcf

Department of Children and Families

Bridgeport Office
100 Fairfield Avenue
Bridgeport, Connecticut 06604
(203) 384-5300
(203) 384-5399 (TTY)
Website: http://www.ct.gov/dcf/site/default.asp  


DEPARTMENT OF DEVELOPMENTAL SERVICES

(DDS) coordinates and oversees services for people of all ages with intellectual disability and persons medically diagnosed as having Prader-Willi Syndrome.  These include: comprehensive case management services; early intervention for infants and toddlers; community-based residential programs; supported living for people in their own residences, job training and supported employment, respite and other family support, and rehabilitation day programs. All services are subject to the availability of resources and may require a waiting period. Services and referrals to community resources are available through three regions.

DDS’s Central Office is located at:

460 Capitol Avenue
Hartford, Connecticut 06106.
Telephone (860) 418-6000 (Voice) or (860) 418-6079 (TTY) or (866) 737-0330 (Voice/TTY).  
Website: http://www.ct.gov/dds/site/default.asp  

Department of Developmental Services Regional Office Locations

West Region
55 West Main Street
Waterbury, Connecticut 06702
(866) 274-3888 (Toll-free/Voice) or (203) 805-7400 (Voice)
E-mail: ddsct.west@ct.gov

Other DDS Programs:

Birth to Three Program is a statewide early intervention program for infants and toddlers with developmental delays. The system includes a range of services for children from birth to 36 months, such as home visits, therapies, developmental evaluation, parent support, and health services depending on the needs of the child and his/her family. INFOLINE (211) serves as the access point for the program.

For information or to make a referral to the program,

Telephone: (800)-505-7000 (Toll-free, Voice/TTY).  
Website: www.birth23.org


DEPARTMENT OF LABOR

(DOL) provides protection to workers on the job by enforcing statutes relating to payment of wages, health and safety, employment of minors, family and medical leave, representation by labor organizations and resolution of labor disputes. The Research Office monitors the state’s economy and its impact on the workforce. Publications are available to the public regarding the labor market, worker protection and other employment-related information.  

The Department of Labor’s Central Office is located at:
200 Folly Brook Boulevard
Wethersfield, Connecticut 06109.

Telephone: (860) 263-6000 (Voice)
or (860) 263-6074 (TTY).
Website: www.ctdol.state.ct.us.

The Department of Labor administers:

Unemployment Insurance, a joint federal/state program providing benefits for eligible workers who qualify under Connecticut law. Unemployment insurance does not cover all cases, and benefits are paid only when certain legal conditions are met.

CTWorks - The Department of Labor has CTWorks Centers throughout Connecticut that provide a variety of services to individuals seeking jobs.

Department of Labor Regional Offices/CT Works Centers
2 Lafayette Square
Bridgeport, Connecticut 06604
Telephone: (203) 455-2700 (Voice)
TTY (203) 455-2714
Website: www.ctdol.state.ct.us/ctworks/ctworks.htm


GOVERNOR’S COMMITTEE ON EMPLOYMENT OF PEOPLE WITH DISABILITIES

distributes public awareness information about employment opportunities for people with disabilities and promotes increased awareness of the value of hiring people with disabilities. The Committee itself does not provide job placement services to people with disabilities.

For more information,

Telephone: (860) 263-6067 (Voice)
or write to:
Department of Labor,
200 Folly Brook Boulevard,
Wethersfield, Connecticut 06109.
Website: www.ctdol.state.ct.us/gendocs/GCEPD/t-GCEPD.htm


LIBRARY FOR THE BLIND AND PHYSICALLY HANDICAPPED

Lends books and magazines on diskette, cassette or in Braille. Playback equipment, such as tape recorders, is provided free of charge to any Connecticut adult or child who is prevented by a visual or physical disability from reading ordinary-size print. All materials are available by postage-free mail. Call or write to request an application and certification procedures.

The Library is located at:

198 West Street, Rocky Hill,
Connecticut 06067.

Telephone: (860) 721-2020 (Voice/TTY)
toll-free: (800) 842-4516 (Voice/TTY)  
Website: www.ctstatelibrary.org/organizational-unit/library-blind-physically-handicapped


DEPARTMENT OF MENTAL HEALTH AND ADDICTION SERVICES (DMHAS)

Works to improve the quality of life of the people in Connecticut by providing an integrated network of comprehensive, effective and efficient mental health and addiction services that foster self-sufficiency, dignity and respect.

DMHAS promotes and administers comprehensive, recovery-oriented services in the areas of mental health treatment and substance abuse prevention and treatment throughout Connecticut. While the Department’s prevention services are available to all Connecticut citizens, its mandate is to serve adults (over 18 years of age) with psychiatric or substance use disorders, or both, who lack the financial means to obtain such services on their own.  DMHAS also provides collaborative programs for individuals with special needs, such as: persons with HIV/AIDS infection, people in the criminal justice system, those with problem gambling disorders, pregnant women with substance abuse problems, persons with traumatic brain injury or hearing impairment, those with co-occurring substance abuse and mental illness, and adolescents transitioning out of the Department of Children and Families.

DMHAS operates on the belief that most people with mental illnesses and/or substance use disorders can and should be treated in community settings, and that inpatient treatment should be used only when absolutely necessary to meet the best interests of the individual.  Effective care requires that services such as residential, supportive, rehabilitative and crisis intervention programs are available within their local communities.

DMHAS’ Central Office is located at:

410 Capitol Avenue, P.O. Box 341431
Hartford, Connecticut 06134.

Telephone Number: (860) 418-7000 (Voice) or
(860) 418-6707 (TTY).
(Toll-free) 1 (800) 446-7348 (Voice) or
1 (888) 621-3551 (TTY).
Website: www.ct.gov/dmhass  


DEPARTMENT OF MOTOR VEHICLES (DMV)

Processes HANDICAPPED PARKING PERMIT applications (temporary and permanent). There is a $5.00 application fee for temporary permits. A permanent handicapped parking permit is valid for the same duration as your license or identification card; temporary permits are valid for no more than six months. Your physician must certify on the application form that your disability or medical condition qualifies you to receive a permit.

To obtain an application form, call the Department of Motor Vehicles Office:

(860) 263-5700 (Within Hartford area or outside of Connecticut)
1 (800) 842-8222 (Elsewhere in Connecticut) or go to the Motor Vehicles Office nearest you.
Website: www.ct.gov/dmv


THE CHILD ADVOCATE (Consolidated with the OFFICE OF GOVERNMENTAL ACCOUNTABILITY (OGA))

Was established in 1995 to protect the civil, legal and special rights of all the children in Connecticut, and to advance policies throughout the state that promote their well-being and best interests.

For more information, call or write to the Child Advocate at:

999 Asylum Ave. Hartford
Connecticut 06105

Telephone: (860) 566-2106 (Voice/TTY) or
Toll-free: 1 (800) 994-0939 (Voice/TTY)
Website: www.ct.gov/oca


OFFICE OF THE HEALTHCARE ADVOCATE (OHA)

The OHA assists with questions related to enrollment in healthcare coverage, understanding the referral and pre-authorization process. They also provide assistance with grievance processes and appealing denials.  

Located at:

OHA
153 Market St
Hartford, CT, 06144.

Telephone: (Voice) (866) 466-4446
Website: www.ct.gov/oha


OFFICE OF PROTECTION AND ADVOCACY FOR PERSONS WITH DISABILITIES (P&A)

Is an independent State agency created to safeguard and advance the civil and human rights of people with disabilities in Connecticut by providing information, referral, consultation, organizing assistance to local groups, and various types and levels of advocacy assistance. Part of a nationwide network of protection and advocacy systems, P&A operates under both State and federal legislative mandates to: provide information, referral, and advocacy services; pursue legal and administrative remedies on behalf of people with disabilities who experience disability-related discrimination; conduct investigations into complaints from people with disabilities; and investigate allegations of abuse and neglect of adults who have intellectual disability (ages 18-59) and people in psychiatric facilities.  The agency also provides public education and training and informs policymakers about issues affecting people with disabilities.

The Office of Protection and Advocacy for Persons with Disabilities is located at:

60-B Weston Street
Hartford, Connecticut 06120

Telephone: (860) 297-4300 (Voice)
(860) 297-4380 (TTY) or
1 (800) 842-7303 (Voice/TTY).
Website: www.ct.gov/opapd
email: OPA-Information@ct.gov


DEPARTMENT OF PUBLIC HEALTH (DPH)

Protects the health and safety of the people of Connecticut and actively works to prevent disease and promote wellness through education and programs such as prenatal care, immunizations, AIDS awareness, supplemental foods, and cancer (mammography) screening. DPH also monitors infectious diseases, and environmental and occupational health hazards; regulates health care providers such as health facilities, health professionals, and emergency medical services; provides testing and monitoring support through the state laboratory; collects and analyzes health data to help plan policy for the future; and is the repository for all birth, marriage and death certificates.  

Department of Public Health
410 Capitol Ave.,
Hartford, CT 06134

Telephone: (860) 509-8000 (Voice)
(860) 509-7191 (TTY)
Website: www.ct.gov/dph

Department of Public Health Programs:

Children and Youth with Special Health Care Needs  (CYSHCN)

is a statewide program for children with chronic illness or disability. The program partners with community-based services to provide care coordination; resource linkages to support groups; agencies and other helpful services; educational support and respite funding when available. The CSHCN program can pay for medical services. For information, call Child Development Infoline at 1-(800) 505-7000 (Toll-free).

Connecticut Collaborative to Improve Autism Services  is a statewide collaborative effort sponsored by the Department of Public Health’s (DPH) Children and Youth with Special Health Care Needs (CYSHCN) Program and the University of Connecticut Center for Excellence in Developmental Disabilities (UCEDD).

Child Development Infoline (CDI) at 1-800-505-7000.
Website: www.ct.gov/dph/cwp/view.asp?a=3138&q=499610  


Department of Rehabilitation Services (DORS) oversees the following programs:

Bureau of Education and Services for the Blind (BESB) provides comprehensive, confidential services for persons of all ages who are legally blind. A person is legally blind if central visual acuity does not exceed 20/200 in the better eye with correcting lenses or if the visual field is restricted to an angle of 20 degrees or less. Services include: counseling and referral; preschool, elementary, secondary education; vocational rehabilitation; rehabilitation teaching; orientation and mobility instruction; small business enterprise; technology evaluation and training on adaptive equipment; employment options within an industrial setting; industries and sales; support groups; confidential registry of persons who are blind; prevention; consultation; and public education.  BESB is located at 184 Windsor Avenue, Windsor, Connecticut 06095 Telephone: 1 (800) 842-4510 (VOICE/TTY/Toll-free) or Hartford (860) 602-4000 (Voice). Website: www.ct.gov/besb

Connect-Ability brings employers together with individuals who have disabilities.  The aim is to remove barriers and teach employers that employees with disabilities can join the work force and succeed.  Toll-free: (866) 844.1903. Website: https://www.ct.gov/connect-ability/site/default.asp

Connecticut Tech Act Project is a program whose goal is to assure that all citizens with disabilities have access to necessary assistive technology. This is accomplished through public awareness, systems change activities, training, advocacy, and services to individuals. Call 1-(800) 842-4524 or (860) 424-4881 for more information.  Website: www.cttechact.com

Deaf and Hard of Hearing Services (DORS) serve individuals with hearing impairments. DORS Deaf and Hard of Hearing Services provide interpreting services, job counseling and placement, personal and family counseling, information and referral services, research and advocacy.

CDHI is located at:

67 Prospect Ave., 3rd Floor
Hartford, Connecticut 06106.

General information and interpreting services: (860) 231-8756 (Voice/TTY) or
Toll-free in Connecticut (800)-708-6796 (Voice/TTY).

For emergency interpreting services after hours, call:
860) 231-7623 (Voice/TTY).
Telecommunication relay service may be used for both numbers.
Website: www.cdhi.ct.gov  

Disability Determination Services Unit is responsible for deciding eligibility for the Social Security Disability Insurance (SSDI) and Supplemental Security Insurance (SSI) programs. These programs provide cash benefits to individuals who are unable to maintain employment due to the severity of their disabilities.  Telephone: (Toll-free) (800) 842-8320.

Independent Living Program a statewide network of community-based, consumer-controlled centers for independent living that provide services to assist persons with disabilities to live more independently.  Call toll-free: (800) 537-2549 or (860) 424-4844 (Voice) for more information.

MED-Connect allows people with disabilities to engage in employment without risking eligibility for needed medical services through the Medicaid program. The program also allows certain individuals to keep other necessary services needed to remain employed. In general, an eligible person with a disabling condition who is employed can qualify for Medicaid without the use of spend down while earning income in excess of traditional income limits.

Vocational Rehabilitation helps individuals with physical and mental disabilities, prepare for, obtain, and maintain employment. Information on BRS services is available by contacting the BRS central office at (860) 424-4844 (Voice), (860) 424-4839 (TTY) or by calling the toll-free number 1-(800)-537-2549 (Voice) or (860) 424-4839 (TTY).

Work Incentives Planning and Assistance Program (WIPA) Community Work Incentive Coordinators help consumers figure out how much going back to work would impact their federal and state benefits.  (Toll-free) 1 (800) 773-4636.

The DORS Central Office is located at:

25 Sigourney, 11th floor
Hartford, CT 06106.
Telephone (860) 424-4844 or (Toll-free) 1 (800) 537-2549 (Voice) or (860)424-4839 (TTY). Website:www.ct.gov/dors

Western Region

Bridgeport Office
1057 Broad Street
Bridgeport, CT 06604
Telephone:  (203) 551-5500*
Fax: (203) 579-6903

Danbury:  (203) 207-8990*
Stamford:  (203) 251-9430*
Torrington:  (860) 496-6990*
Waterbury:  (203) 578-4550*

*Voice and TDD/TTY

DORS Directions and Office Locations available at: www.ct.gov/brs/cwp/view.asp?a=3890&q=456880#Central


DEPARTMENT OF SOCIAL SERVICES (DSS)

Serves families and individuals who need assistance in maintaining or achieving their full potential for self-direction, self-reliance, and independent living. The Department of Social Services’ Central Office is located at (new location) 55 Farmington Avenue, Hartford, CT  06105. Telephone: (Toll-free) 1 (800) 842-1508 or 1 (800) 842-4524 (TTY).
Website: www.ct.gov/dss .

Western Region

Bridgeport (203) 551-2700; (TTY) 384-5399
Danbury (203) 207-8900
Stamford (203) 251-9300
Torrington (860) 496-6900
Waterbury (203) 597-4000

DSS operates many programs in the State of Connecticut including:

Acquired Brain Injury (ABI) Waiver, a Medicaid Waiver program, provides a range of non-medical, home and community based services, to assist adults who have an acquired brain injury (not a developmental or degenerative disorder) to live in the community.  Adults must be between the ages of 18 and 64 to apply, must be able to participate in the development of a service plan in partnership with a Department of Social Services social worker, or have a Conservator to do so, and must meet all technical, procedural and financial requirements of the Medicaid program, or the Medicaid for Employed Disabled program. An adult deemed eligible for the ABI Waiver, is eligible for all Medicaid covered services. Applications and information about the ABI Waivers are available at DSS offices throughout the state.

Adult Services provides home care services to eligible people with disabilities. Social workers coordinate planning and management of services to help clients stay independent in the community. Services include homemaker, housekeeper, chore person, adult companion, day care, and home-delivered meals.  Individuals must meet income and asset eligibility requirements.

Child Care Certificate Program provides monthly subsidies to eligible families to help them pay for child care.  

Family Support Grant (FSG) provides a monthly subsidy of up to $250 ($3,000 annually) to a parent or other family member who has primary responsibility for a child with a developmental disability (age 5 through 18) other than an intellectual disability, in order to meet the extraordinary expenses of that child. Gross income cannot be greater than 140% of the previous year's median family income for Connecticut. The subsidy can be used for ongoing costs such as medical expenses, special equipment, medical transportation, and special clothing. There are 25 slots statewide for this program. The Department has established a waiting list. Persons interested in having their names added to the list may contact any of the Department's regional offices, or Social Work Services at (860) 424-5388, to obtain a Waiting List Request Form.  

Fatherhood Initiative promotes the positive involvement and interaction of fathers with their children with an emphasis on children eligible, or formerly eligible for services funded by the temporary assistance for needy families block grant. For information, contact your local DSS office. Website: www.fatherhoodinitiative.state.ct.us

Food Stamp Program (now known as SNAP) is a federal program designed to give low-income households extra money to purchase food.  You can apply to the Social Security Office or at the Department for Social Services Office nearest to you.  (Toll-free) 1 (800) 843-1508. Website: www.ct.gov/dss/cwp.

Home and Community-Based Services is a state-funded program that provides non-medical homecare services as part of an overall case plan to assist adults with physical and/or mental disabilities, ages 18-64 inclusive, to live in the community. The program also provides these services for a family with a supervising relative who is temporarily incapacitated, unable to manage the household, or has a disability. Program services include: adult day care; adult companion; home delivered meals; case management; assistance with chores; case work; homemaker; temporary foster care; social work; teaching homemaker; and personal emergency response system. Eligibility depends on income levels related to Medicaid, asset levels related to SSI, certification of need by a physician or other appropriate healthcare professional, and a DSS social work assessment. Application is made by contacting your local DSS regional office.

Medicaid, also called Title XIX, is a federal program administered by the State of Connecticut, to provide medical coverage for eligible participants. The rules and regulations of the program are extremely complex. Anyone needing help with paying past, current or future medical expenses is encouraged to apply. Contact your nearest regional DDS office.

Personal Care Assistant (PCA) Waiver is a Medicaid Waiver program that provides personal care assistance services to assist adults with chronic, severe, and permanent disabilities, to live in the community. Adults must be ages 18-64 to apply, must have significant need for hands on assistance with at least two activities of daily living (eating, bathing, dressing, transferring, toileting), must lack family and community supports to meet the need, and must meet all technical, procedural and financial requirements of the Medicaid program, or the Medicaid for Employed Disabled program. Eligible adults must be able to direct their own care and supervise private household employees, or have a Conservator to do so. An adult deemed eligible for the PCA Waiver, is eligible for all Medicaid covered services. An application may be obtained by contacting a Department of Social Services regional office.

Qualified Medicare Beneficiary (QMB) and Specified Low-Income Medicare Beneficiary (SLMB) Programs are federal and state funded programs that provide health care coverage and financial assistance by paying the cost of Medicare for eligible Medicare beneficiaries. QMB pays Medicare premiums, deductibles and copayments to fill the gaps on Medicare coverage by eliminating out of pocket expenses. SLMB program pays the Medicare Part B premium. Both programs are administered by the Department of Social Services.

Security Deposit Guarantee Program guarantees landlords up to two months rent instead of an actual payment.  Households must meet certain eligibility requirements

State Administered General Assistance (SAGA), also called City or Town Welfare, is a financial assistance program for individuals or households who do not have enough income or resources to meet basic living expenses and who cannot get immediate financial help from other government programs. Decision on each case must be made within ten calendar days of the date assistance was requested, and, if the individual or household is found to be eligible, assistance must be given by the eleventh day. Emergencies with food and medical needs must be met on the same day assistance is requested. For more information call: 1 (800) 658-4472

Temporary Assistance to Needy Families (TANF) (previously Aid to Families with Dependent Children, or AFDC) is a program funded by the state and federal governments to provide financial and medical assistance to eligible families. The TANF program is designed to enable very poor families to provide basic necessities for their children. TANF funds many programs of DSS. This program includes preventive services, and services to families, the elderly and people with disabilities and SNAP the new food stamp program; and energy assistance.  Info Line: (Toll-free) (800) 658-4472 Website: www.ct.gov/dss/cwp


UNIVERSITY CENTER FOR EXCELLENCE IN DEVELOPMENTAL DISABILITIES

Assists people of all ages with disabilities to access the support and services they need to live independently. The Center is a part of a federal system established in 1963 to address the needs of persons with disabilities through a coordinated program of interdisciplinary training, dissemination, outreach services, and applied research. The center promotes interdisciplinary collaboration across academic and community settings and serves as a resource for public policy development through the dissemination of research findings and information about best practices.  The agency, part of the University of Connecticut, is located at:

263 Farmington Avenue, MC6222,
Farmington, Connecticut 06030.

Telephone: (860) 679-1500 (Voice)
(860) 679-1502 (TTY)
toll-free (866) 623-1315.

Website: www.uconnucedd.org



Federal Agencies/National Organizations

 

NEW ENGLAND ADA CENTER

Facilitates voluntary and effective compliance with the Americans with Disabilities Act (ADA) of 1990. The New England ADA Center is one of ten regional disability and business technical assistance centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The Center is a project of Adaptive Environments, Inc., a nonprofit organization.

New England ADA Center
180-200 Portland Street, First Floor
Boston, Massachusetts 02114.  

Telephone: 1 (800) 949-4232 (toll-free Voice/TTY).

Website: www.newenglandada.org


U.S. DEPARTMENT OF JUSTICE (DOJ) - CIVIL RIGHTS DIVISION

The primary goal of the Disability Rights section is to achieve equal opportunity for people with disabilities in the United States.

Telephone:  (800) 514-0301
(800) 514-0383 (TTY)

Website: www.ada.gov


U.S. EQUAL EMPLOYMENT OPPORTUNITY COMMISSION (EEOC)

Protects individuals from discrimination in employment on the basis of race, color, sex, religion, national origin, age or disability. Discrimination by employers with 15 or more employees is prohibited in all aspects of the hiring and employment process or any other terms, privileges or conditions of employment provided or imposed by the employer. More information about these programs may be obtained from your local town or city government.

The EEOC can be contacted at:

131 M Street NE,
Washington, DC  20507.

Telephone: (800) 669-4000
(800) 669-6820 (TTY)

For the field office near you.
Website: www.eeoc.gov .


SOCIAL SECURITY ADMINISTRATION

Administers programs for persons with disabilities who cannot work or are limited in their ability to work. Social Security Disability Income (SSDI) is paid to persons with disabilities who are unable to work due to a medically determinable physical or mental impairment which has lasted or can be expected to last for a continuous period of not less than 12 months, or whose disability will result in death. Certain children, adult children with disabilities, widows/widowers may be eligible for SSDI.  Check the blue pages of your phone book under “Social Security Administration” for the local Social Security office or call:

1 (800) 722-1213 (toll-free).

Website: www.ssa.gov.

Supplemental Security Income (SSI) is a federal income assistance program for the people who are elderly, blind, and/or disabled. Unlike Social Security Disability, SSI has limits on a recipient’s income and assets. Recipients may receive both Social Security Disability and Supplemental Security Income, if eligible for both. Check the blue pages of your phone book under “Social Security Administration” for the telephone number of the local Social Security office.  

For additional information, contact Social Security at:

(800) 772-1213 (Voice)
(800) 325-0778 (TTY)

Website: www.ssa.gov



Disability Organizations/Resources

 

ADAPT (American Disabled for Attendant Programs Today)

Focuses on promoting services in the community instead of institutionalizing people with disabilities in special facilities and nursing homes. Attendant services help with daily living needs such as eating, dressing, toileting, and moving from wheelchair to bed and are the cornerstone to community based services for people with severe disabilities. On the national level, ADAPT has targeted the reallocation of one quarter of the federal and state Medicaid dollars from institutional programs to consumer controlled community based programs.

Website: www.adapt.org


ADVOCACY UNLIMITED, INC.

Teaches advocacy skills to mental health consumers to empower them to play a central role in shaping the policies and services that affect their lives.

Advocacy Unlimited is located at:
300 Russell Road
Wethersfield, Connecticut 06109.

Telephone: (860) 667-0460
Toll-free at (800) 573-6929. (Voice/TTY)  

Website: www.mindlink.org


AIDS/HIV RESOURCES AIDS PROJECTS

These projects provide direct-service, community-based services that are run by mostly volunteers.  Services, which vary from project to project include: outreach and education; case management; meals-on-wheels; hotlines in English and Spanish; financial help; transportation, and housing.  There are support groups for people with HIV and for people with AIDS. There are also support groups for caregivers.

For more information about AIDS Projects, call the most local project listed below.

The HIV/AIDS Hotline is:
(800) 953-2371
Telephone: (860) 247-2437

Norwalk
Mid-Fairfield AIDS Project...................(203) 855-9535

Southport
Evergreen Network.............................(203) 254-0511

Stamford
Stamford Cares..................................(203) 977-5096

Website: www.aids-ct.org


AMERICANS WITH DISABILITIES ACT COALITION OF CONNECTICUT, INC. (ADACC)

Informs Connecticut citizens about the Americans with Disabilities Act (ADA) and works to foster voluntary compliance. It provides information, training, and technical assistance on rights and responsibilities under the ADA. Outreach strategies have been developed to ensure minority individuals with disabilities and their families understand the law. An alternative dispute resolution service provides an alternative to litigating ADA disputes.

The ADACC Office is located at:

60B Weston Street
Hartford, Connecticut 06120.

Telephone: (860) 297-4383 

Website: https://www.adacc.net/


ARC CONNECTICUT (ARC CT)

Formerly the Association for Retarded Citizens Connecticut, is a private, non-profit organization that advocates for full participation of people with intellectual disabilities in all aspects of community life. Services include residential services, vocational services, education, advocacy, and appropriate referral.

For information, contact:

ARC Connecticut
43 Woodlawn Street Suite 260
Hartford, CT 06105

Telephone: (860)246-6400 (Voice)

Website: www.thearcct.org


BRAIN INJURY ALLIANCE

Connecticut an agency helping people in Connecticut who have a brain injury and their families.  They provide case consultation, referral and advocacy services, educational prevention programs, in-service programs, and recreational social opportunities.

For specific information and services, contact the agency:

200 Day Hill Road, Suite 250
Windsor, CT 06095

Telephone: (860) 219-0291
Help Line 1 (800) 278-TBIA (8242).

Website: www.biact.homestead.com


CENTER FOR MEDICARE ADVOCACY, INC.

Is a national non-profit, non-partisan organization that provides education, advocacy, and legal assistance to help elders and people with disabilities obtain Medicare and necessary healthcare. The Center focuses on the needs of Medicare beneficiaries, people with chronic conditions, and those in need of long-term care. The organization is involved in writing, education, and advocacy activities of importance to Medicare beneficiaries nationwide. The Center's national office is in Connecticut, with offices in Washington, DC and throughout the country. The Center's staff act as consultants and trainers for groups that are interested in learning about healthcare rights, Medicare coverage and appeals, or in developing Medicare advocacy projects.

For assistance with a Medicare or health care access problem, write or call the Center:
P.O. Box 350
Willimantic, CT 06226:

Telephone: (800) 262-4414 (toll-free)
(860) 456-7790.

Website: www.medicareadvocacy.org


CHRONIC FATIGUE IMMUNE DEFICIENCY & FIBROMYALGIA ASSOCIATION (CFIDS)

Publishes a quarterly newsletter, provides information and referrals to persons living with CFIDS, Chronic Epstein Barr Virus or Fibromyalgia.

For more information, contact:

Connecticut CFIDS Association, Inc.
P.O. Box 3010
Milford, Connecticut 06460

Telephone: (800) 952-2037 (Voice/TTY)

Website: www.ct-cfids-fm.org


CONNECTICUT ASSOCIATION OF THE DEAF (CAD)

Is an organization of concerned citizens who promote the best interests of people who are deaf or hard of hearing in Connecticut.

For more information, write to:

Connecticut Association of the Deaf,
P.O. Box 207589
West Hartford, Connecticut 06127-0589.

Interpreter: (866) 351-1959

Website:  www.deafcad.org


CONNECTICUT AUTISM RESOURCE AND EDUCATION ALLIANCE (CARE)

Was established in May 2004 as a non-profit, donor-funded corporation dedicated to providing young children with autism, their families, caregivers, and service providers with intervention opportunities, as well as information, and materials needed to develop, maintain and manage successful intensive intervention programs. The primary goals of CARE Alliance are providing the funding for educational opportunities for young children with autism spectrum disorder and training for parents, caregivers, and service providers in intensive, extensive autism intervention methods.

The CARE Alliance is located at:

P.O. Box 5
Marlborough, CT, 06447

Telephone: (860) 918-0283.


CONNECTICUT AUTISM SPECTRUM RESOURCE CENTER (ASRC)

Is a non-profit organization committed to raising public awareness about autism spectrum disorders and devoted to empowering families and lessening their isolation. They are dedicated to educating families, professionals and the general public to the many strengths that people with ASD have and to promote the respect that they deserve.

101 North Plains Industrial Road. Harvest Park
Wallingford, CT 06492

Telephone (203) 265-7717

Website www.autismconnecticut.org


CONNECTICUT FAMILY SUPPORT NETWORK

Is a network of families who have children with disabilities. They are parents interested in helping other parents to find the supports they need. The Network was created by the Connecticut Family Support Council, a legislatively established partnership of parents and professionals working to improve supports for families of children with disabilities.

Contact your local Family Support Coordinator

Statewide Coordinator:
Tesha Imperati
203-710-3041

Southwest Region:
Lisa Sheppard
203-556-7317

Children with Special Health Care Needs Coordinator:
Laura Knapp
888-410-1068


CT-KASA

The Connecticut chapter of Kids as Self Advocates (CT-KASA) is a grassroots network of youth with special needs and their friends, speaking on behalf of themselves.  As leaders in our communities, CT-KASA members help to spread information among peers to increase knowledge around various disability issues including: living with special healthcare needs, healthcare transition, education, and employment.

Contact:

CT-KASA
263 Farmington Ave., MC622
Farmington, CT 06030;

Telephone: (860) 679-1561
(860) 679-1502 (TTY)


CONNECTICUT LIFESPAN RESPITE COALITION, Inc.  

(CLRC) is a nonprofit organization that seeks to bring people and organizations together to develop a coordinated system to address respite needs, regardless of the age, race, ethnicity, special needs or situation of the care recipient.  

For more information:

 CLRC
1845 Silas Deane Highway
Rocky Hill, CT 06067

Telephone: (860) 513-0172
Toll free 877-737-1966

Website: www.ctrespite.org


CONNECTICUT PARENT ADVOCACY CENTER, INC.

(CPAC) is a statewide nonprofit organization established to inform parents of children with disabilities about special education rights and procedures, and to provide information and referral services for any problems related to the education and welfare of their children. Services include workshops for parents, in-service training for professionals, a newsletter, resource collection and individual assistance. Spanish-speaking staff is available.

The Center is located at:
338 Main Street
Niantic, Connecticut 06357.

Telephone: (860) 739-3089
Toll Free (800) 445-2722 

Website: www.cpacinc.org


CONNECTICUT RADIO INFORMATION SYSTEM

(CRIS) broadcasts readings 24 hours a day from local and national newspapers, and current magazines. CRIS special radios are provided at no charge to listeners who have a visual, physical or learning disability that prevents them from reading conventional print information.

Contact:

CRIS
315 Windsor Avenue
Windsor, Connecticut 06095.

Telephone: (860) 527-8000
Toll Free: (800) 708-0004.  

Website: www.crisradio.org


CONSUMER CREDIT COUNSELING SERVICE OF SOUTHERN NEW ENGLAND

(CCCS) is a private, nonprofit counseling agency licensed by the state Department of Banking, affiliated with the National Foundation for Consumer Credit. CCCS provides confidential counseling; money management and budgeting skills; and debt repayment planning assistance.

For more information:

Toll Free: 1-866-889-9347 (Voice/TTY)

Website www.creditcounseling.org


CORPORATION FOR INDEPENDENT LIVING

(CIL) provides an array of services including home modifications, group home development and affordable housing development.

CIL is located at:
30 Jordan Lane
Wethersfield, Connecticut 06109.

Telephone: (860) 563-6011

Website: www.cilhomes.org


ECOLOGICAL HEALTH ORGANIZATION

(ECHO) is a statewide non-profit organization that provides advocacy, support resources, education and referral services for people with multiple chemical sensitivity and others who are interested in its prevention.

For more information:

Telephone: (570) 472-0374

Website: www.echomcsct.homestead.com


EPILEPSY FOUNDATION OF CONNECTICUT

Is a statewide non-profit organization that provides information and referrals, education programs, summer camp for children with epilepsy, support services, and advocacy.

For more information, write or call the Foundation at:
386 Main Street
Middletown, CT  06457

Telephone: (860) 346-1924
Toll Free: (800) 899-3745

Website: www.epilepsyct.com
E-mail EFCT@sbcglobal.net


FAVOR

Is a family advocacy organization for children’s mental health.  The family advocates work within a network of family members, parent organizations and other advocates who provide a variety of multicultural and educational opportunities and resources.  They work together to improve services and support for children and families through individual advocacy system change and legislative agendas.

FAVOR, Inc.
185 Silas Deane Highway
Wethersfield, CT  06109-1219

Telephone: (860) 563-3232.

Website: www.favor-ct.org


HISPANIC HEALTH COUNCIL

HHC is committed to improving the health and social well-being of Puerto Rican/Latinos and other underserved communities through community-based research, direct services, training and advocacy.

For more information, contact the Hispanic Health Council at:

175 Main Street
Hartford, CT  06106.

Telephone: (860) 527-0856.

Website: www.hispanichealth.com


HOUSING EDUCATION RESOURCE CENTER

(HERC) provides a variety of services including a Foreclosure Prevention Counseling Program, tenant/landlord counseling and information regarding a wide variety of housing topics.

HERC
901 Wethersfield Ave.
Hartford, CT 06114,

Telephone: (860) 296-4372.

Website:  www.herc-inc.org


INDEPENDENT LIVING CENTERS

(ILCs) are private, non-profit service programs that assist persons with disabilities to achieve their maximum independence and control of their lives and to develop skills to live and work in the community. The four core services are advocacy, information and referral, peer counseling and skills training.

Disability Resource Center of Fairfield County
80 Ferry Boulevard, Suite 210
Stratford, Connecticut 06615

Telephone: (203) 378-6977 (Voice/TTY)


INFOLINE 211

Is a free, help-by telephone service for information, referral, and crisis intervention that is easily accessed from anywhere in Connecticut by dialing 2-1-1.  Trained professionals help callers find information, discover options, or deal with a crisis by locating hundreds of services in their community on many different issues including those of interest to persons with disabilities.

For example, Infoline offers information and referral about disability counseling and support groups, assistive technology purchase and repair, in-home and respite care, case management services, developmental assessments, legal/advocacy/disability rights groups, home modification and barrier removal, and supportive living and employment programs.

Infoline operates 24 hours a day, has multilingual caseworkers on staff, and is TTY accessible.  Infoline is a service of the United Way and the State of Connecticut.

Telephone: 211 (Voice/TTY)
Toll Free: (800) 203-1234 (TTY)

Website: www.211ct.org


JOBS ACCOMMODATION NETWORK

(JAN) provides free assistance with disability employment issues and accommodations. They also provide guidance on the Americans with Disabilities Act (ADA) and related legislation as well as self-employment and entrepreneurship options for people with disabilities.

Telephone: (Voice) 800-526-7234
(TTY) 877-781-9403.  

Website: www.askjan.org


MASHANTUCKET PEQUOT TRIBAL NATION VOCATIONAL REHABILITATION SERVICES

(MPTN-VR) provides culturally sensitive Vocational Rehabilitation services to state or federally recognized Native Americans with disabilities residing in Connecticut and Rhode Island in order to assist them to prepare for, find or maintain appropriate employment.  Traditional Native American services are provided in coordination with the vocational rehabilitation services. Traditional services include, but are not limited to: Sweat Lodge, Smudging, Talking Circle, Prayer, Social Events, and Traditional Lifestyle.

For further information contact:

Vocational Rehabilitation Program Tribal Health Services
P.O. Box 3310
Mashantucket, CT 06338-3310

Office: (860) 396-2281
Toll-Free: (860) 399-1122
Fax: (860) 396-2282.


NATIONAL ALLIANCE OF THE MENTALLY ILL OF CONNECTICUT, INC.

(NAMI-CT) is a statewide organization for the families, friends and individuals living with serious mental illness. NAMI provides support, education, information and advocacy.

For more information:

NAMI
241 Main Street, 5th Floor
Hartford, CT 06106

Telephone: (860) 882-0236

Toll Free: 1 (800) 215-3021

Website: www.namict.org  


NATIONAL MULTIPLE SCLEROSIS SOCIETY – CONNECTICUT CHAPTER

Is committed to empowering people with multiple sclerosis to live as independently as possible to the maximum of their capabilities within the least restrictive environment.  The M.S. Society is a non-profit organization supporting research that examines the cause, prevention and treatment of MS, as well as the quality and scope of health services for people with M.S.

For information, contact the Connecticut Chapter:
659 Tower Avenue, First Floor
Hartford, CT  06112.

Telephone (860) 913-2550.

Website: www.nationalmssociety.org/chapters/CTN/index.aspx


NATIONAL ORGANIZATION ON FETAL ALCOHOL SYNDROME

(NOFAS) is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for individuals and families.

Telephone Toll Free: 1 (800) 66-NOFAS.  

Website: www.nofas.org


NATIONAL SPINAL CORD INJURY ASSOCIATION–CONNECTICUT CHAPTER

Members work with local agencies to develop better programs and services for people with spinal cord injuries and act as community advocates for improved access, housing, transportation, employment and leisure time activities for individuals with disabilities. Peer support and other services are also provided.

For more information on the Connecticut Chapter, call:
(203) 284-2910

Website: www.sciact.org.


NEW ENGLAND ASSISTIVE TECHNOLOGY CENTER (NEAT)

Is a demonstration and an equipment restoration center.  It is a place to learn about products and equipment that assist people with day to day activities they have trouble doing themselves, either because of disability or age.  The public may also donate or purchase equipment. NEAT also offers workshops on various assistive technology topics.

Contact:
NEAT
120 Holcomb Street
Hartford, Connecticut 06112.  

Telephone: (860) 243-2869
(860) 286-3113 (TTY/Voice)

Toll-free: (866) 526-4492 (Voice)

Website: www.neatmarketplace.org


NONVERBAL LEARNING DISORDERS ASSOCIATION (NLDA)

Is an international non-profit corporation committed to facilitating education, research and advocacy for children and adults who have disabilities associated with nonverbal learning disorders.  

Contact:
NLDA
507 Hopmeadow Street
Simsbury 06070

Telephone: (860) 658-5522.


PADRES ABRIENDO PUERTAS or Parents Opening Doors

(PAP) is the only community-based organization in the State of Connecticut solely devoted to opening doors of opportunity to Latino children by guaranteeing access to quality education and mental health services. They foster the human, civil and educational rights and total community inclusion of Latino children with developmental disabilities and mental health issues.

Contact:
PAP
60 B Weston Street
Hartford, Connecticut 06120.  

For more information, call (860) 297-4391 (Voice) or (860) 297-4380 (TTY).


PEOPLE FIRST OF CONNECTICUT

Is a non-profit, self-advocacy organization for individuals with developmental disabilities. Local chapters regularly meet around the state.

For more information, (203) 792-3540.

Website: www.peoplefirstct.org


PROPERTY TAX ABATEMENT

Individuals with disabilities may qualify for reduced property taxes through their town. Contact your town's tax office to find out what is available in your area.

In Wilton: 
www.wiltonct.org


SALVATION ARMY

Offers many services at various centers throughout Connecticut. The services include Family Shelter, The Right Place School Readiness & Family Resources Center, Food and Clothing Bank, Adult Drug and Alcohol Rehabilitation Center, Grandparents’ Support Groups, Young Parents Program, Girls, Inc., Food for Life Pantries, Senior Center, Camp CONNRI, CONNRI Lodge Retreat & Conference Center, Homeless Prevention Program, and After School Programs.  The Salvation Army runs thrift stores, soup kitchens, feeding and nutrition programs and other services.

Divisional Office:
855 Asylum Avenue
Hartford, CT.

Telephone: (860) 702-0000.


Legal Assistance

 

AMERICAN CIVIL LIBERTIES UNION OF CONNECTICUT (ACLU-CT)

Is a non-partisan, non-profit membership organization whose mission is to assure that the Bill of Rights and the rights guaranteed by the Connecticut Constitution are preserved for each new generation. The ACLU-CT accomplishes these goals through legislative advocacy, litigation, grassroots organizing and public education on a broad array of issues affecting our liberties. The ACLU-CT is one of 53 affiliates of the American Civil Liberties Union nationwide.  

They can be contacted at:

330 Main Street, First Floor
Hartford, Connecticut 06106.

Telephone: (860) 523-9146

Website: www.acluct.org


CENTER FOR CHILDREN’S ADVOCACY, UNIVERSITY OF CONNECTICUT SCHOOL OF LAW

Is a non-profit organization dedicated to the promotion and protection of the legal rights of poor children who are dependent on a variety of Connecticut systems – Judicial, Child Welfare, Health, Mental Health, Education and Juvenile Justice.  Based at the University of Connecticut School of Law, the Center’s twin missions are to provide holistic legal services to children in their communities and to improve quality of legal representation of children through interdisciplinary models and training programs.  

They are located at:

65 Elizabeth Street
Hartford, Connecticut 06105

Telephone: (860) 570-5327

Website: www.kidscounsel.org


CHILDREN’S LAW CENTER OF CONNECTICUT, Inc. (CLC)

Is a non-profit agency that provides indigent children with experienced lawyers who give them a Voice in family court. CLC also provides information in legal matters involving children, and advocates in support of legislative policies that advance the well-being and best interests of children.

The Center is located at:  

30 Arbor Street, Fourth Floor North Building
Hartford, CT 06106.

Telephone: (860) 232-9993
(888) 529-3667.

Website: www.clcct.org


CONNECTICUT LEGAL RIGHTS PROJECT (CLRP)

Is an independent, non-profit agency that advocates for low-income adults who have or are perceived to have a psychiatric disability. CLRP’s attorneys and legal advocates provide services ranging from brief advice to full legal representation with legal problems related to: services and/or treatment from mental health or other providers, enforcement of rights guaranteed by State or Federal law such as due process, non-discrimination, and informed consent, administrative and judicial procedures such as grievances, conservatorships, commitments, and medication hearings.

For more information call:

1-877-402-2299 (V/TTY)
TTY (860) 262-5066.

Website: www.clrp.org  


CONNECTICUT WOMEN’S EDUCATION AND LEGAL FUND (CWEALF)

Is a statewide non-profit organization dedicated to empowering women, girls and their families to achieve equal opportunities in their personal and professional lives.  Since 1973, CWEALF has utilized legal and public policy strategies and provided community education to promote gender equity and end sex discrimination at individual and societal levels. They can be reached at:

One Hartford Square West, Suite 1-300
Hartford, CT 06106

Telephone:  (860) 247-6090
Fax (860) 524-0705

Website: www.cwealf.org


LAWYER REFERRAL SERVICES 

A project of the Connecticut Bar Association, can suggest a private attorney who, for a nominal consultation fee, will assess a case and provide an estimate of charges. Area Offices are listed below:

Fairfield: (203) 335-4116
Hartford: (860) 525-6052
New London: (860) 889-9384
New Haven: (203) 562-5750

Website: www.ctbar.org


UNIVERSITY OF CONNECTICUT SCHOOL OF LAW LEGAL CLINIC

Represents indigent individuals in criminal matters, asylum, human rights, mediation, intellectual property and tax. 

45 Elizabeth Street
Hartford, Connecticut 06105

Telephone: (860) 570-5165.

Website: www.law.uconn.edu/academics/clinical-education


YALE UNIVERSITY LAW SCHOOL CLINIC

Links law students with individuals in need of legal help who cannot afford private attorneys.  

Yale Law School
P.O. Box 209090
New Haven, Connecticut 06520-8215.

Telephone: (203) 432-4800.

Website: www.law.yale.edu/academics/clinicalopportunities.htm



 

Support Groups and Other Useful Resources

 

American Diabetes Association

2080 Silas Deane Highway; 2nd Floor
Rocky Hill, CT  06067
Telephone: (203) 639-0385   

Website:  www.diabetes.org for local contact.


Arthritis Foundation Connecticut Office

35 Cold Springs Road – Suite 411
Rocky Hill, Connecticut 06067

Telephone:  (860) 563-1177
(800) 541-8350.

Website: www.arthritis.org/connecticut/


Bridgeport Child Advocacy Coalition

2470 Fairfield Avenue
Bridgeport, Connecticut 06605

Telephone: (203) 549-0075

Website: www.bcacct.org/main


Connecticut Association of Centers for Independent Living (CACIL)

151 New Park Avenue, Hartford CT 06106

Telephone: (860) 656-0430 or (800) 261-3769

Website: www.cacil.net


Connecticut Families for Effective Autism Treatment (FEAT)

P.O. Box 370352, West Hartford, Connecticut 06137-0382

Telephone: (860) 571-3888

Website: www.ctfeat.org


Connecticut Family Voices - PATH Parent to Parent of CT

Parents Available to Help, Inc.
P.O. Box 117;
Northford, CT  06472.

Telephone: 1 (800) 399-PATH
(toll-free CT only)

Website: www.pathct.org


Cystic Fibrosis Foundation CT Chapter -

101 Centerpoint Drive; Suite 107
Middletown, CT  06457

Telephone: (860) 632-7300

Website: www.cff.org


Juvenile Diabetes Foundation (JDRF)

Website: www.jdrf.org for local chapter.


Leukemia and Lymphoma Society  (LLS)

LLS Connecticut Chapter - Main Office
372 Danbury Road, Suite 200
Wilton, CT  06897

(203) 665-1400

Website: www.lls.org


Mental Health Association of Connecticut

61 South Main Street
West Hartford, Connecticut 06109

Telephone: 1 (800) 842-1501
(toll-free CT only) (860) 529-1970

Website: www.mhact.org


Muscular Dystrophy Association

148 Eastern Boulevard
Glastonbury, Connecticut 06033

Telephone: (860) 633-4466

Website: www.mda.org


National Federation of the Blind of Connecticut

477 Connecticut Blvd, Suite 217
East Hartford, CT 06108

Telephone: (860) 289-1971

Website: www.nfb.org


National Organization for Rare Disorders (NORD)

55 Kenosia Avenue
Danbury, Connecticut 06813

Telephone: Toll free: (800) 999-6673 (Voicemail only)
TTY Number: (203) 797-9590

Website: www.rarediseases.org


Prader-Willi Syndrome Association (USA)

Telephone: (800) 926-4797

Website: www.pwsausa.org


Spina Bifida Association of Connecticut

P.O. Box 2545
Hartford, Connecticut 06146

Telephone: 1 (800) 574-6274 (toll-free).

Website: www.sbac.org


Tourette Syndrome Association (national)

Telephone: (718) 224-2999;

Website: www.tsa-usa.org


United Cerebral Palsy Association

Website: www.ucpect.org/